Bardet-Biedl Syndrome UK

Support for people with Bardet-Biedl Syndrome their families and carers

Provides support, advocacy and information services to adults and children with Bardet-Biedl Syndrome, their families and carers. Support includes through diagnosis, health transitions and treatments. Further support includes information and booklets, annual family conference weekend, activity breaks and trips, young people and adult groups and newsletter. Calls to a 07 mobile number typically cost between 10p to 20p from a landline and 3p to 65p from a mobile.

07510 384242

Website Email

Area

Whole of UK

Opening Times

Monday to Friday, 9am-5pm

Charges

None

Age Range

Adults, Children