Sarah's story: 'I reached out to The Migraine Trust support services at a point when my chronic migraines with visual aura were becoming increasingly debilitating'

I reached out to The Migraine Trust support services at a point when my chronic migraines with visual aura were becoming increasingly debilitating. I wanted reassurance that I truly understood the treatments available to me and that I hadn’t missed an option that could bring relief. By then, I had exhausted all treatment avenues available to me and the constant cycle of pain left me feeling frustrated, isolated, and worn down by the effort of simply coping.

The information and support I received helped me reach a place of acceptance. I now understand that I was already doing everything within my control to manage my condition. That reassurance really mattered—it eased the sense of failure I carried and allowed me to meet my situation with more compassion toward myself.

Reaching out also opened new doors. I found ways to stay informed and advocate for my health by joining the charity’s involvement panel. I feel part of an active community of changemakers—who strive to make a difference. Visibility in a space where the daily impact and severity of migraine is often misunderstood or minimised is so important in ensuring those affected are truly seen and heard.