Nerve Tumours UK National NF Helpline
Ensuring each and every patient has direct access to the correct care path and subsequent support services.
Nerve Tumours UK funds a unique Specialist Support Network to help the 26,500+ children and adults in the UK diagnosed with NF, along with their carers, families and the many associated medical professionals who support them. NF is the group name for a set of neuro-genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2), and Schwannomatosis (SWN). The national helpline is staffed by Band 7 Specialist NF Nurses. Contact can be made via telephone, email and messaging.
The helpline cannot diagnose or treat patients. It advises patients, or their GP, on how to make appropriate referrals. They can intervene with a GP, ensuring the pathway to/from genetic testing is valid and referrals are made. They can liaise and work with other healthcare professionals such as physiotherapists, occupational therapists and mental health services.
07939 046030
Freephone 0300 102 17 22
Opening Times Monday, Wednesday, Friday 9am to 5pm /// (Tuesday & Thursday 10am -12 noon, triage booking is available for the operational days above)
Charges: No Charges
Age Range: All ages